When dealing with a degenerative disease like Huntington's, there are days and then there are days! It's been tough recently as Marvin is struggling with some issues. I may tend to get a bit emotional in these times. I try to keep that at home, and most of the time, I am successful.
Today was a pool day, but I didn't want to fall apart in the water! (I'm just imagining myself truly coming apart in the water!)
Yesterday there were some good, funny things:
When I woke up Tuesday, my mind had been working on Marvin's struggles. I had some ideas. I was focused on those thoughts as I talked with the nurse and the aide. I fed Marvin, and we left the dining room with his unfinished cup of water and plastic spoon. My plan was to finish feeding him the water, but he was full.
I signed out at the front desk, walked to my car, and got in and suddenly realized I had the plastic water glass in my hand, spoon and all. I just put it in the cup holder and went home.
When I came back to help at 4:30 I walked in with the water glass...I didn't take home the things I needed to, but certainly got that water! The nurse and aides laughed.
Although he wasn't feeling well, Marvin enjoyed hearing a couple funny stories from his past, and laughed (noiselessly). It just blesses my heart when he laughs with his eyes and smile.
Grief can be a long, long process with an incurable disease. I am thankful for the ability to feel my feelings, process, take a break, and then return to my post. God is faithful.
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